J Caring Sci. 2017;6(1):59-65.
doi: 10.15171/jcs.2017.007
PMID: 28299298
PMCID: PMC5348664
  Abstract View: 241
  PDF Download: 277

Original Research

Family Stigma Associated With Epilepsy: A Qualitative Study

Reza nabi amjad 1, Alireza Nikbakht Nasrabadi 2, Elham Navab 2 *

1 1Department of Nursing, Faculty of Nursing and Midwifery, Alborz University of Medical Sciences, Karaj, Iran
2 2Department of Nursing, Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran

Abstract

Introduction: Harmful nature of epilepsy can affect the patient and their parent. Stigma, arising from it, affects the patient and their family. To relieve it understanding the experiences of the parent are useful. This study was aimed at understanding the experiences of parent of child with epilepsy in Iran. Methods: In this interpretative phenomenological study, 10 parents who took care of their child with epilepsy were participated. Data were collected through in-depth semi-structured interviews. After transcription, data were analyzed using Van Manen’s method. Results: Family stigma emerged as a main theme in data analysis with three subthemes including becoming verbally abusive, a dull and heavy shadowed look, and associates interference. Conclusion: Family stigma is a major challenge for parents of child with epilepsy need to special attention by health system. Nurses, as a big part of the system, can play an important role to manage this problem.

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Submitted: 08 Oct 2015
Accepted: 01 Mar 2017
First published online: 01 Mar 2017
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